Faith, Love and Respect for ALL

Archive for December, 2012

Surgery Day

Today was the BIG day, surgery day, for Beth to have a tonsillectomy and adenoidectomy.

We got our girl up right before it was time leave, about 5:20am, changed her diaper, slipped her coat and hat on, and were on our merry way. She watched Cinderella on the way to the hospital, and although she was apprehensive when we first arrived, she quickly warmed up, and really impressed everyone with her Au-Someness, including her proud momma.

Once we were settled in Pre-Op, she set her bed for a tea party, which of course included her new favorite toy, the talking cookie jar. We had a lovely tea party, and even nurse Mary was offered tea, which she said was delicious. The great thing about Nurse Mary is that she was Henry’s pre-op nurse last December, when he had his back surgery and she remembered us. She also loved Beth, and could not say enough wonderful things about her, and even came to check on her in our private recovery room.  The funniest part of our tea party was when daddy “ate” too many cookies and Beth scolded him: “Dad Pleeease! That’s IT, you go out there!” and pointed out in the hallway. Oh my, we all could not stop laughing, except Beth who seriously thought daddy needed a time out, until he tickled his way back into her good graces with her favorite shark puppet.

We were busy counting cookies when Dr. W came in to discuss the surgery and make sure all the prep was done. She greeted him quite happily and then something amazing happened. When he was leaving she wanted to shake his hand, just like mommy and daddy did. She was very cute and shy about it, but also beamed with pride when we told her how Au-Some she was. Not surprisingly, when the anesthesiologist came in, he was greeted with a shy smile and handshake right away. She did so well with all the staff and was playing, talking and smiling right up to when they took her choo-choo-ing away for the operating room. Dr. W said she was even fine back there until they put the mask on, then she started to get agitated, but was asleep before she could even cry.

We barely had time to make our calls saying she was in surgery and settle in the waiting room, when they called us to meet with Dr. W. her surgery only took about 35 minutes. He said her tonsils were HUGE and touching, which we already knew. He then explained that they rate adenoids on a scale from 1(normal/small) – 4(large/completely blocking sinus passage), Beth’s were a 3. Once we talked to doctor, they took me back to initial recovery room right away. She had been a bit wild when she woke up, so they gave her some medicine to calm her down in her IV, until I could get there. The second time she woke up, she cried for a few minutes, but quieted down quickly once she was snuggled in my lap. After that she was talking to Nurse Jan and was quite concerned for the other children in the recovery room. Many of them were crying, screaming, kicking, and biting the staff. Beth said: “Oh no mommy! I hear it, the babies crying, they sad.” Then when some of the monitors were beeping, she was talking to Jan about those. On the way to our private recovery room, she was talking up a storm and scripting the take-off sequence from Little Einsteins, which was actually quite appropriate, because of recliner on wheels could very well have been a magical rocket.

Once in the private recovery room, she was in-and-out of a very restless sleep, as her body tried to process the anesthesia. She was crying from disorientation, almost as much as pain, but she asked for water right away. We were so excited to see her drink! In her first hour-and-a-half of recovery she had drank almost 8oz of apple juice/water. Around 11am, we were able to get some pain meds into her by mixing them with juice. With the comforts of her weighted blanket and lovey, plus the Tylenol with Codeine, her coloring got much better and she finally settled into a peaceful sleep.  Nurse Maggie took great care of our girl, and by 1:30 she had drank almost 13oz of water/juice and had 2 wet diapers, so we were ready to go home. It was such a relief to be taking her home, so she could recover in her own bed.

On the way home she watched the end of Cinderella, and drank a few more ounces of water, she even had a little smile when we got home. We brought her up and got her settled on the couch, and managed to get a few more ounces of water into her, before she fell asleep. That was the end of the smooth sailing. After that she would not drink anything else, especially any of the juices that we tried to mix her pain medicine into. After repeated attempts, she was so suspicious, that she would not drink water either. Then her temperature was going up, she was obviously in pain, and could not nap. I was becoming a sad, worried mommy, so I called the doctor. We ended up using Tylenol suppositories to help relieve her fever and pain, wrapped her neck with our cold rice sock, and just took turns cuddling her in the recliner. Finally after 4 hours, she took a few sips of water, which eventually led to a few ounces of water. Although she is not drinking as much as we would like, she is having consistent wet diapers, and we are doing the best we can to keep her comfortable. Henry and I will be taking shifts tonight to monitor her and be at her beck-and-moan. Praying she gets some rest and starts healing tonight.

Words cannot even express my gratitude for how this day unfolded. By the grace of God and my program, I was calm and confident all day. I just knew that she was going to be fine, and that she would be coming home with us. I just never imagined how well she would do with everything, from start to finish. So many of the staff commented on how well she was doing, what a pleasure it was to work with her, how sweet she was, how she didn’t seem autistic. That was when I saw my opportunity to spread some awareness and acceptance. I took advantage of the opening to brag about Early Intervention, our amazing school district, and our extraordinary therapists. I explained how important it is to get in-tune with your child and help them build on their strengths, because every child’s strengths present differently. I proudly told them that yes she is Autistic, and yes she is making wonderful progress and yes our Autistic children are wonderful blessings to all who know them. Every child is unique and every child should be celebrated, and hopefully today, I helped a few miracle workers understand that a bit better. What an absolutely amazing day, thank you for all your prayers and well wishes, because they certainly were felt and added extra magic to a miraculous day. So much to celebrate, our cup runneth over…

ty prayers

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Autism Proud – Journey With Us – by Jest Tu Positive by Dorothy Stronglove is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.

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2 posts in 1

I hope everyone had a wonderful Christmas. I intended to post a Christmas greeting, but was too busy playing with the kids to get on the computer. I did say a Christmas prayer for everyone though and hoped that everyone was counting endless blessings to celebrate Jesus’s birthday.

We did Christmas differently this year, to give Beth a bit of a break. We celebrated Christmas Eve on Sunday, with our family, who we typically would have seen on Monday. Then Monday we stayed home and kept it a low-key day as her body tried to regulate back to its normal state. Tuesday we had a wonderful Christmas morning at home playing with some of the girls’ gifts. They even ate breakfast in their new wagon, Big Red. In the afternoon we headed to my folks for a small family dinner and the girls had the extra treat of spending the night, while Henry and I enjoyed an impromptu date night. We went to the movies at our favorite theater, which serves food and adult beverages, to see The Hobbit, and it was AWESOME! We came home to a quiet house and had a real night’s sleep to prepare for the coming days. All in all, the holiday celebrations went well and were quite enjoyable, even though we greatly missed family that could not join us due to illness and scheduling conflicts. As long as everyone is healthy and Beth is up to it, we will be doing Christmas all over again on New Year’s Day with my in-laws, who were trapped in bed with bad sinus infections this holiday season.

 Christmas

So now that Christmas is over it is time for the next big event in our life. Beth is having surgery tomorrow to remove her tonsils and adenoids. She has had what we call the “mystery cough” at night, for almost a year now, which not only wakes her up, but keeps Anne from sleeping as well. After trying every possible treatment, we finally saw an ENT right after Thanksgiving.  The doctor is Au-Some and was actually able to look in her mouth, without her melting down or vomiting all over. God bless the man, he even crawled around on the floor with her, to conduct the full exam. We decided to wait until winter break to have the surgery, so she would not miss school. Unfortunately this plan backfired and she had a horrible virus which caused her to miss the last 2 weeks of school. Thankfully her teacher is AMAZING and sent us get well pictures with all her friends. At the moment Anne is at my parents’ house, and will be vacationing in the Land of Spoiled for a few days while we focus on Beth. We are to arrive at the hospital at 6am for a 7:30am surgery. If all goes well, and we have the best case scenario, she will be home recovering by the afternoon with lots of cuddles from mommy and daddy. If things do not go as we hope, then she will be admitted to keep her hydrated and manage her pain. We are preparing for the worst, but praying for the best. Fortunately she has quite a high pain tolerance, so as long as we can get her to drink fluids, then I think we can handle recovery at home. Henry is a nervous wreck, and there really is no comforting him until all is said and done. I am strangely comfortable with it, and I know I owe that to Al-Anon and my program. I have turned it over to God, and I am confident that everything will unfold as it is meant to, and I know she is going to do great, and will be so much better for having the surgery. I am also very excited at the prospect of being able to remove at least 3-4 medicines/supplements from her regiment, after she recovers from her surgery.

If you are inclined to pray, I would ask that you please keep Beth in your prayers during the coming days. We are praying for a successful surgery, followed by a quick and manageable recovery at home, because she has spent far too much time in the hospital already this year. I may not be around for a while, but I welcome the feeling of your prayers holding us tight in loving hugs tomorrow and in the days to follow.

bless you

 

 

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Autism Proud – Journey With Us – by Jest Tu Positive by Dorothy Stronglove is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.

Angel

Something AMAZING happened to me tonight, I met an Angel in the parking lot at Walmart.

We have had a rough few weeks, with Beth being sick and life in general not going as planned. As hard as I have been trying to work my program, I find myself still struggling lately, and I  had a horrible case of the blahs today. Although I had finished my Christmas shopping early, I had not stocked up on the household essentials and had to go shopping to get much needed supplies for the girls. So off I went with my sad self, short on patience and cranky because I had to go out in the madness that is holiday shopping 3 days before Christmas. Traffic was horrible, but I put in my ‘Mercy Me’ cd and let the music take me over, soon I was feeling better. Perhaps it was just being out of the house without any sick, whiny children. I love my children but after 2 weeks of being in quarantine with Beth, I am kind of losing my mind.  Plus Anne has hit the terrible two’s just a wee bit early, and sometimes I feel like I am living with two teenagers instead of two kids under age 4.

I finally arrived at my first destination, Fashion bug, which is having a going-out-of-business sale. My wonderful mother-in-law, who knows me all to well, told me I was getting money for Christmas, but I HAD to use it to buy myself clothes, and that I could get more bang for my buck since everything was at least 60% off. Well I spent 1.5hours shopping for me and actually spent all the money on ME, which is not easy considering there is ALWAYS something I can buy for the kids or a bill to pay. Normally I would feel guilty but I was actually happy and excited about my purchase, and had to call momma right away to thank her for making me take care of myself.

Feeling MUCH better at this point, I headed over to Walmart to do the important shopping. I was also there for over an hour, but it was not that enjoyable. Somehow the holiday season manages to bring the worst out in people when they are shopping. I just kept being as polite as could be, and smiling at crabby people, just so I could get through the trip without losing my happy feeling. I finished shopping and my cart was overflowing with diapers, wipes, kid supplies and house supplies. I made my way out to the parking lot, and loaded everything in the van. All the while looking over my shoulder, because I am VERY cautious in parking lots, especially at night, because I am afraid of the dark. Then I went to return my cart to the corral, and that is when it happened…

When I turned around there was a woman standing next to me, I still am not quite sure where she came from, but there she was.

She said: “Excuse me miss, this is for you, Merry Christmas.”
Without evening looking at what she had, I said: “Oh, no thank you.”
She replied: Oh no, please take this. It is from my heart and for you for Christmas.”
I took the little envelope from her hand and said: “Thank you so much.”
She smiled at me and said: “Your welcome, Merry Christmas and God Bless.”

She walked past me, and I quickly went back to the van, got in and locked the doors. I honestly did not know what to think about what just happened, and feared it may be some kind of scam. I sat for a moment listening to the music, which was one of my favorite songs, Beautiful by Mercy Me, then I looked at/in the envelope and there it was:ImageThe woman, who had disappeared as quickly as she had appeared, had given me a $25 gift card for Walmart. The outside said: “For Someone Special” and the inside, as shown above, said: “You Are Loved.” I looked for her in the parking lot, but she was gone; so I just sat there all tingly (the good, did that really happen, chills), crying and saying Thank You to the night sky.

I have NEVER had anything like this ever happen to me, and hours later, still cannot believe that it really happened. On a day when I really needed something to snap me out my funk, God sent me an Angel to remind me of all the miracles and blessings in the world. I am grateful for the financial help, but I am even more thankful for the spiritual help. A simple act of kindness and generosity from a stranger, has given me the BEST Christmas gift of all, for the lady with the red hair and leather jacket reminded me what life is really about, and how it truly is better to give than receive.  Thank You beautiful Angel! I received the message loud and clear, there is still so much good in the world, that I cannot be deterred by the struggles.  I will be eternally grateful for your loving kindness and promise to pay it forward, as best I can.  May we all grow this holiday season through Hope, Love and Faith.  God Bless!

 

 

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Autism Proud – Journey With Us – by Jest Tu Positive by Dorothy Stronglove is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.

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